RESOURCES
hEDS Resources
Please take a look at books and websites that discuss Hypermobile Ehlers-Danlos Syndrome
This book covers FAQs, comorbidities and management. I have found it very useful to take to medical appointments.
Run, carefully but don't walk to Alex's website. Alex is an Osteopath that I connected with over TikTok and I have learnt so much through her and her fabulous community on Discord. Simply wonderful.
This UK based organisation has a helpline, support groups, forms, information and a lot more educational content including presentations. Both a free and membership organisation.
Jeannie is a pilates teacher and has developed a series of hEDS friendly gentle exercises with different levels of difficulty to help stretch AND strengthen the body. I have joined the app and found it very useful.
Pain Resources
Please take a look at books and websites that discuss chronic pain
The Painfree Mindset
This book covers pain and how to reframe your mindset to find a new way to feel and think about pain.
Pain UK is an alliance of charities providing a voice for people in pain
This book gives a new look at pain and tools to help cope and practice new ways of managing pain
This app provides tools and information for pain management and a new way to view pain
Books about hEDS
These books have been really helpful to me and my hEDS journey. I enjoy them for several reasons which I will blog about next year.
The book I am currently reading is by Zebra App Creator, Jeannie Di Bon. It is a book with gentle exercises aimed at helping the hypermobile body.
Books about Pain
I am learning so much about Pain as a medical, biological, emotional concept and it is vast and complex. I am learning skills rather than taking pills. I will blog about this more next year.
I am reading some good books about pain so I will share those once I have processed them and how they may have helped me.
Coming Soon
I will soon be featuring groups of practical tools, supports, products, books, services and much more that I have personally used to help deal with pain, fatigue, injury and much more.